posted 25 January 2006 10:45 PM            

To answer your question for most of us the answer is no....however some of us say that after awhile they have gotten the taste buds back.

Guess that's not much of an answer....so I guess that's as much hopeful optimsm as I can give.
Althoug I would be more concerned about the spelling issues

posted 29 January 2006 08:26 PM            

You said you were having a sinus headache, not a migraine. However, A lot of times when I have a migraine, I will also have intestinal problems. It is actually a s/e of migraines not medication.

There was a study posted somewhere on WHA of migrainers that confused their sinus headaches with migraines but I couldn't find it. I am not a doc but it sounds like maybe you had a migraine and didn't realize it. Did you take a triptan first to see if it helped? Migraines can also cause your nazal passage to get stuffed up and your eyes to tear up. This happens to me on occation and when I take a triptan (amerge) it always relieves those s/e but doesn't help with the intestinal thing.

I hope your feeling better

Hello to everyone on the board! Rj, Princess, Kj, Gabbysdad, and everyone new too!

Sorry, I haven't been on in a while. I have been on here and there but haven't been in the mood to type much. I had to have surgery on my shoulder and the doo-daa drugs they gave me also left me with migraines. So, I have been on rotation, doo-daa drugs for the shoulder then triptans for the head. My head feels good right now....took an amerge a few hours ago but now the shoulder hurts....so in a few hours I will be able to take the shoulder meds. What a life. I can't wait until I can drive and go back to work.

Someone of was having problems sleeping (I can't remember who, sorry. My Neuro has me take a very low dose of Zanaflex (1/2 of 2mgs) every night, along with my topa. It is non addictive and is some type of muscle relaxer. He actually started me on it a long time ago before the topa because he said that it would help with tension. All I know is that it knocks me right out and I sleep all night. So, I have never had any problems taking topa at night.

I am currently taking 100 mgs at night and 25 during the morning. Since, I started taking the little extra in the morning it has helped reduce my migraines even more. I didn't even have any s/e at all when I increased my dose.

As far as weight loss goes...I really haven't lost much weight since I have been on topa since August 05. Maybe 5-8lbs but I really didn't want to loose any weight either as my weight is really just where it should be for my height. I also intentionally eat extra food just to keep the weight on. LOL!

I know several of you mentioned your hair falling out. My pharmacist recommended a vitamin called Biotin and its very inexpensive. I take one a day and it really has helped me.

Sorry for the long post....I had a lot to catch up on....Happy New Year to everyone too!

Skye

posted 30 January 2006 03:00 PM            

Teri Roberts knows a TON and I have found her to be very valid in her concerns and decisions. Maybe you shouldn't feel so threatened if she is deleting you- just educated. She may be sending you a message (yoo hoo). Why aren't you in cahoots with her?

Are you going to suggest that we tie rulers to our heads again with rubber bands or bandanas? I am trying to imagine myself walking around at work with a ruler plastered to the side of my head...I'm imagining the conversation now..."Hello Mr. Johnson - come on in....I am glad you could meet with me today...I need to discuss your daughters behavior...Oh - this ol' thing - it's just a ruler ....I wear it to prevent migraines - prescribed by a migraine specialist named Ali11 Hotbird. What? You thought is was a radio receptor? NO! No really we are a respectable organization and I AM a professional ...."

I might be on Topamax Ali, but I'm not a lu-lu. OK?

Thanks for the soliciting - but hey...No thanks,
RJ

PS. How do you afford that channel? Do people cut into their head before they strap the ruler on it?

posted 30 January 2006 03:34 PM            

Skye - sorry to hear about your shoulder. I hope you feel better soon and get out to zippin’ around. I liked how you used the term "doo da"! Sums it up, doesn't it?

Spacey - you have a great question. I haven't been on because I have been traveling for work. I was going to post even though I saw you took a Tylenol cold. I have a prescription that my MD had given me of Guaifensen PSE 120, produced by Entex. I took that and for two days (this was over a month ago) and I had irregular heartbeats along with NO water in my mouth what-SO-ever. Oh my garsh!!! Lizard tongue. There was a desert in my mouth... I am pretty sure it was the Sahara. It impaled the sinus infection alright and just about wiped me out with it (diagnosed because the substance I was spitting was the color of the WHA board screen - lovely I know. Had to share. ). I will never be taking THAT along with Topa again. In fact, I will not be taking sinus meds with Topa anymore after that experience. I don't think my body does so well with them. When I entered it on line with the drug interaction directory the "PSE" did have a possible interaction with the Topa. Enough – no more.

Skye has a great point on the sinus headaches I want to add. Nausea and that funky thing Spacey had going on (and we’ll leave it there) – could have been from a migraine attack though and not from a sinus infection. Best way to tell – is to pay close attention to the next one.

I found Topa to thicken my mucous though. It antagonizes my asthma too a bit. The best thing to do - is drink a lot of water and tea (decaf) at night. Thins it out.

Hope this will help some of you. Gmax - as long as you drink. You'll be all good.

Take care everyone,
RJ

posted 30 January 2006 05:59 PM            

I am so sorry to hear about your friend. So so sorry. I hope that the Topa works at 100% for you now too. Gmax - no padded rulers. ok? It is just a bad day..... Ali is being kind of creepy. WHA will adjust the posting..... I tend to Trust Teri Roberts. She is a huge patient advocate and a migrainer herself. If she is evaporating this person there is probably a VERY GOOD REASON, I am sure.

I am so sorry again. I am thinking about you.

Hugs,
RJ

posted 31 January 2006 01:11 AM            

I found the article on sinus headaches and migraines so I am going to try to paste the link. I am horrible at this so if you see a bunch of edits, you know why LOL!
www.w-h-a.org/wha2/Newsite/resultsnav.asp?color=C2D9F2&idContentNews=767

I thought that I too had a sinus headache (I posted it a few pages back) because it was on the opposite side f my head and felt different than my normal migraines. I went to my asthma doc who is also an alergist and he said that I did not have a sinus infection and that my headache was in no way caused by my sinus. I then went to my neuro and he confirmed that my new headache was a migraine....even though it was different from my normal migraines.

Also, if you are having sinus headaches, please be very careful because they can turn into sinus infections. You might want to see a doctor spacey I hope you are feeling better!

skye

[This message has been edited by skyestruck (edited 31 January 2006).]

posted 31 January 2006 06:57 PM            

I thought about you last night while I was doing the dishes and thinking about "life". You popped into my head. I hope that you are feeling somewhat better - stronger at least. Times like yours are a challenge. I hope that your migraines are subdued for you here for a while - at least to give you that much of a break. Best advice someone gave me lately is to be like a willow tree......flow whichever direction you feel the wind hurling against you. It's alright to do sometimes. Sure has helped.